Wee, Wee, Wee...All the Way Home

actually, more like cough, barf, wahhhhhhh all the way home. but we are here. and luckily it's only a 15 minute trip! they released Wyatt last night from Children's with a few new meds and a little less congestion. not much though, he is still raspy and full of mucous (ew, too much information?), but is in a much better mood and eating better as well. i hope to keep him healthier, somehow, and make the best of a missed week of work. for now we are all happy to be sleeping at home! thanks for the well wishes everyone!

Back Again

thanks for all the comments about Wyatt's newest endeavor, yoga. we've had to put his practice sessions on hold for the past 4 days - we are back at Children's with another bout of respiratory illness. i'm not specifying the type because the truth is i really don't know if it's pneumonia, croup or whatever. didn't you ask? (you might ask) of course. it's never clear. everything is pneumonia-like, a possibility of this, a chance of that. and since Wyatt's diagnosis complicates most areas of his functioning, it slows the processes down. anyway, we are surviving. if only i could sleep at night, this would be like a vacation for me. the new Children's Hospital here in Pittsburgh is quite comfortable. a sushi bar in the cafeteria, a view of the city that anyone would pay an arm and a leg for. i have hours upon hours to kill, with no house to clean and no paperwork to complete. but since i'm dog tired i am not enjoying myself. Wyatt isn't either. he hasn't been his happy, smiley self lately and it stinks to see him so crabby. but we started him back on the full feed a few hours ago and he hasn't needed any oxygen for 24 hours....so here's hoping we are home tomorrow! wish us luck!

A boy after my own heart

as some of you may know - i am a yoga teacher. (along with being Wyatt's mom, a wife, a therapist, a researcher, a messy house keeper, and a Twilight addict. yes, she said it. even that last one is true!) so when Wyatt completely passed out during his physical therapy session in child's pose i couldn't help take pictures. i've been dreaming of the day when he would do some yoga on his own. you know i'm constantly twisting him and moving him around in yoga-like poses, but for some reason, seeing him do this just melted my heart. and it reminded me of a story my mom told me once, about a yoga teacher she had that fell asleep in child's pose while teaching the class!

here he is. my little yogini cowboy.

2010

i wanted to post some pictures of Wyatt from christmas and i can't believe it has taken so long! so without further ado, i present to you, Wyatt's Holiday Photo Shoot 2009...




aunt sue was kind enough to take the pictures...we had set up a time with a photographer through the littlest hero's project, to come take the pictures. she never showed. i was so disappointed, but Aunt Goo to the rescue, like usual, and they turned out great.

after making it through 2 bouts of pnuemonia in december, we were pleasantly surprised that the holidays went off without a hitch. i will be posting more pictures soon. but i wanted to get these up before i lost my train of thought!

First Time for Everything

most parents of 16 month olds blog, brag and generally go on and on about all the milestones that their little wonders are passing. the first steps, first words, first time on the potty, blah, blah, blah. i don't mean to sound crabby about it, lord knows that if my little wonder was walking, talking and hitting milestones on time, i would probably fill these pages with the details of every last one of them. and he is doing things we are excited about, recently he has started chewing. a big deal for our little outlaw.
but this week, his first proved to be more terrifying than anything else. Wyatt had a seizure on Sunday night. i don't really want to go into detail, but it was terrifying. we called the ambulance (another first) and spent a few days at Children's sorting it all out.
in terms of Wyatt's neurological complications, we have always known he is at risk for seizures. other children with PCH have them, though some don't. but having made it 16 months, i hoped maybe we were in the clear. doctors believe that an infection and high fever brought on the seizure and then during the seizure he aspirated and got a touch of pneumonia.
so while we are recovering, at home finally, the weeks drama has left me with a lot to think about. mainly, how lucky i am to have this little boy and how i really want to make sure he stays healthy to keep reaching milestones, no matter how small or late. i mean, doesn't this face say enough??


and one cool thing about the hospital stay was that Wyatt had a visit from some Pittsburgh Penguins. the picture is really bad b/c it was taken with my phone, and the funny part about it was that both Wyatt and i were fast asleep (at 3pm) and i woke up to all four of them standing over me. they were very nice and brought Wyatt a Christmas present, but i was so out of it, that i couldn't remember their names. i believe it's Maxime Talbot, Mark Eaton, Alex Goligoski and Eric Godard. i wouldn't know that unless i hadn't looked up the roster that had handy pictures by their names!

running late

i believe that was a title of a former post. just an indication of how things have been going around here lately!

at the end of September Wyatt spent 4 days at Children's to have a g-tube placed. it has been a long recovery for all of us. i think, initially, he was in a lot of pain, then that passed. then he got a bad cold. and that passed. now, he has decided not to sleep at night. and we are waiting for that to pass, too. Ben likes to call Wyatt a puzzle wrapped in an enigma. we just can't seem to figure him out sometimes.

luckily fall is my favorite time of year and my husband is one of the most patient and kind men i know - all in all it's been a good few months. Wyatt has become stronger, has started to really use his hands and arms to reach for toys and interacts with them as he hadn't in the past. his vision evaluation was extremely promising and he continues to improve his skills everyday. and the biggest news of all - at his 15 month check-up, Wyatt was finally back on the growth charts for weight! a status we haven't enjoyed for several months.

here are some fun shots of Wyatt posing with Aunt Goo and me, dressed as Clifford the little red puppy (as one of my yoga kids pointed out) and suffering through the punkin carving again!!

The End of Summer

i wish i was a better blogger, i really do. i saw this blog today Run with E, and the author posts like every hour. i mean, she may as well twitter. but then again, i doubt she has MY LIFE. and what a wonderful life it is. most days. here are a few of the good ones:

a long awaited picture from the dinner group. can you see little Rhyse in there? She was just 2 weeks old!

we've come a long way since this!!!!! (circa 2006)

a cute shot of Aunt Goo with her LB (little buddy).

the little cowboy really getting into his discovery farm book:

looking like i caught him reading a dirty magazine or something!
i think this is where he gets his love of books:

a very, very happy boy!